Patient Groups, Big Pharma and Conflicts of Interest

Company

Name:	Genzyme
Notes:

Funds the following 180 Patient Groups: AACR Foundation for the Prevention and Cure of Cancer Source > ABMM - Association Belge contre les Maladies neuro-Musculaires (Belgian Association against neuro-muscular diseases) Source > ADAC-Asociacion para las Enfermedades Dismorfologicas de Acumulo Lisosomal y del Crecimiento (lysosomal disease) Source > AEEFEG-Asociacion Espanola de Enfermos y Familiares de la Enfermedad de Gaucher (Ass. of Patients with Gaucher Disease) Source > AEEG - Asociacion Espanola de Enfermos de Glucogenosis (Spanish Association of Glycogenosis Patients) Source > AFELT-Amis et Familles d'Enfants atteints de Leucemies ou de Tumeurs (Families of children with leukemia or tumors) Source > AIBAT - Associazione Italiana Basedowiani e Tiroidei (Italian Association of Basedow & Thyroid Disease) Source > AICCAT-Asociacion Iberoamericana contra el Cancer de Tiroides (Ibero-American Association Against Thyroid Cancer) Source > AIDS Action Committee of Massachusetts Source > AIG - Associazione Italiana Gaucher (Italian Gaucher Association) Source > AIMPS-Assoc. Italiana Mucopolisaccaridosi e Malattie affini (Italian assoc. for mucopolysaccharidosis & related disease) Source > AIPAF - Associazione Italiana Pazienti Anderson-Fabry (Italian Association of Anderson-Fabry Patients) Source > AIRG Suisse (Association pour l'Information sur les maladies Rénales d'origine Génétique, section Suisse Romande) Source > AIRG-Ass. pour l'Information et la Recherche sur les maladies renales Genetiques (Ass. for Info on Genetic kidney diseas Source > Alapitvány a Pompe betegekért (Foundation for patients with pompe disease) Source > Alapítvány az ALS betegekért (Foundation for ALS patients) Source > Alianta Nationala pentru Boli Rare (National Alliance for Rare Diseases) Source > American Association of Clinical Endocrinologists Source > American College of Chest Physicians Source > American College of Medical Genetics Source > American Liver Foundation Source > American Society of Clinical Oncology Source > American Society of Hematology Source > American Society of Human Genetics Source > APDT - Associacao Portuguesa de Doentes da Tiroide (Portuguese association of patients of the thyroid) Source > APIR - Associacao Portuguesa de Insuficientes Renais (Portuguese Association of Kidney Disease) Source > APL - Associacao Portuguesa das Doencas do Lisossoma (Portuguese Association of Diseases of Lysosomes) Source > APMF - Association des Patients de la Maladie de Fabry (Association of Patients with Fabry Disease) Source > ArthroseLiga e.V. (Osteoarthritis League of Germany) Source > ASEM - Asociacion Catalana de Enfermedades Neuromusculares (Catalan Association of Neuromuscular Disease) Source > Associacao Portuguesa das Doencas do Lisosoma (Portuguese Lisosomas Association) Source > Association Enzyme (Israel) Source > Association for Patients with Oncological Diseases and Friends (APOZ) Source > Association of Disabled Patients with Gaucher Disease Source > Association of disabled patients with mukopolisaharydoz (Patients with MPS - Mucopolysaccharidoses) Source > Association of Glycogen Storage Diseases (AGSD) Source > Association Solidarity (hellenic association of patients & friends of people with gaucher and other disorders) Source > Associazione Italiana Niemann-Pick (Italian Association for Niemann Pick Disease) Source > Associazione Malati Tiroidei (Thyroid illness association) Source > Associazione Regione Lazio degli Ammalati di Tumore della Tiroide ed Associati (Assoc. of People with Thyroid Cancer) Source > BOKS-Belgische organisatie voor kinderen en volwassenen met een stofwisselingsziekte (Belgians with metabolic disease) Source > Bundesverband der Organtransplantierten e. V. Source > Bundesverband Niere e.V. (Federal Association of Kidney Dialysis & Transplant Patients) Source > Butterfly Thyroid Cancer Trust Source > Center for Information & Study on Clinical Research Participation Source > Central & Eastern European Genetic Network (CEE-GN) Source > Children suffering from Gaucher disease and their families (Russia) Source > Children's Tumor Foundation (National Neurofibromatosis Foundation) Source > Comitato "Maria Letizia Verga" per lo studio e la cura della leucemia del bambino (cancer patient group) Source > Cure Search Source > Cymdeithas Cleifion Arennau Cymru (kidney disease patients) Source > Deutsche Gesellschaft zur Bekämpfung von Fettstoffwechselstörungen und ihren Folgeerkrankungen DGFF (Lipid-Liga) e. V. Source > Deutsche Leukamie-Forschungshilfe Aktion fur krebskranke Kinder (German Leukemia Research Action for Children's Cancer) Source > Dialyseverein Koln & Leverkusen (Dialysis Group of Cologne & Leverkusen) Source > Diavaria - Vereniging Nierpatiënten LUMC Leiden (Association of Kidney Patients LUMC Lieden) Source > DLH Deutsche Leukamie- und Lymphom-Hilfe (German Leukemia and Lymphoma Patient Group) Source > Drustvo distroficara Istre (neuromuscular disease organization) Source > Drustvo za pomoc pri obolenjih scitnice Metuljcica (Society for Assistance with Thyroid Disorders) Source > Endocrine Nurses Society Source > European Alliance of Neuro-Muscular Disorders Associations Source > European Gaucher Alliance (EGA) Source > European Health Forum (EHFG) Source > European Working Group on Gaucher Disease Source > EURORDIS - European Organisation for Rare Diseases Source > Fabry International Network Source > Fabry Pasientforening (Fabry Patients Association in Norway) Source > Fabry Suisse Source > Fabryforeningen (Danish Organization of Fabry Patients) Source > FEDER - Federacion Espanola de Enfermedades Raras (Spanish Federation of Rare Diseases) Source > Federation of Renal organizations of disabled persons of the Republic of Serbia Source > Federazione Lombarda Malattie Rare (Lombarda Federation of Rare Diseases) Source > Fenier Fabir (Federatie van Belgische Verenigingen voor Nierinsufficienten - Belgian Fed. of Assoc. for Renal Disease) Source > FH Norge - Familiaer Hyperkolesterolemi Norge (FH Norway - Familial Hypercholesterolemia Norway) Source > FNAIR-Federation Nationale d'Aide aux Insuffisants Renaux (National Federation of Assistance for Kidney Failure) Source > Foreninge for sjaeldne sygdomem og diagnoser (Danish association of families with rare diseases & disabilities) Source > Foundation of patients with HBN and hemodializiranite in Bulgaria Source > FRAE-Fundacion Renal Asociaciones para la Lucha Contra las Enfermedades Renales (ALCER) Espana (Kidney Foundation) Source > FRAXA - Associazione Italiana Sindrome dell "X-fragile" (Italian Association of Fragile X Syndrome) Source > Fundacion Hipercolesterolemia Familiar (Familial Hypercholesterolemia Foundation) Source > Gaucher Foreningen (Danish Gaucher Association) Source > Gaucher Vereniging Nederland (Dutch Gaucher Association) Source > Gauchers Association UK (Susan Lewis Memorial Fund) Source > Genetic Interest Group Source > GGD - Gaucher Gesellschaft Deutschland e.V. (Gaucher Society of Germany) Source > GIPF - Gruppo Italiano Pazienti Fabry (Italian Group of Fabry Disease Patients) Source > Grupo SIFU (Spanish employment centers for people with disabilities) Source > Heart UK (The Cholesterol Charity) Source > Histiozytosehilfe e.V. (Histiocytosis Help e.V.) Source > Hormone Foundation Source > Hospitalist Conferences USA Source > Hrvatska udruga bolesnika s rijetkim bolestima (Croatian Association of patients with rare diseases) Source > Hrvatska udruga dijaliziranih, transplantiranih i bubreznih bolesnika (Association of Renal Transplant Patients) Source > Interessengemeinschaft der Dialysepatienten und Nierentransplantierten e.V. Source > International Genetic Alliance (IGA) Source > International Liver Transplantation Society Source > IPA - International Pompe Association (pompe disease) Source > Israeli Association for Gaucher Disease Source > Israeli National Kidney Transplantees & Dialysis Patients (R.A.) Source > Jeans for Genes Source > Kenneth B. Schwartz Center Source > Keystone Symposia on Molecular and Cellular Biology Source > Kidney & Urology Foundation of America, Inc. Source > Kidney Foundation of Ohio Source > Kidney Research UK Source > Komitee for Barneveckan i Orebro (Committee for Children's Week in Orebro) Source > Landesverband Nierenkranker, Dialysepatienten und Transplantierter Niedersachsen (Kidney Dialysis & Transplant Patients) Source > Leukamiehilfe Rhein-Main g.e.V. (leukemia patient group) Source > LRS - Ligue Rein et Sante (League of Kidney Health) Source > Lysosomal Disease Society of Russia Source > LysoSuisse (support group for lysosomal storage disease patients) Source > MFSH - Morbus Fabry Selbsthilfegruppe e.V. (Fabry's Disease Self Help Group e.V.) Source > MPS - Gesellschaft für Mukopolysaccharidosen e.V. (Society for mucopolysaccharidoses) Source > MPS Espana-Asoc. de las Mucopolisacaridosis y Síndromes relacionados (Ass. of Mucopolysaccharidosis & Related Syndromes) Source > MPS Foreningen (Mucopolysaccharidoses Society) Source > MPS-Gesellschaft für Mukopolysaccharidosen und ähnliche Erkrankungen (Society for mucopolysaccharidoses & related disord Source > MS Liga Vlaanderen (Flemish Multiple Sclerosis League) Source > Mukopoliszacharidózis Társaság (Mucopolysaccharide Society) Source > Myelodysplastic Syndromes Foundation Source > Myeloma UK Source > National Alliance of People with Rare Diseases (Bulgaria) Source > National Association of Gaucher Disease (Bulgaria) Source > National Association of Managed Care Physicians Source > National Association of Patients with Rare Diseases Source > National Childhood Cancer Foundation Source > National Coalition of Cancer Survivorship Source > National Committee for Quality Assurance Source > National Foundation for the Centers for Disease Control & Prevention, Inc. (CDC) Source > National Gaucher Foundation Source > National Jewish Medical and Research Center Source > National Kidney Foundation of Northern California, Inc Source > National Kidney Foundation of South & Central Texas Source > National Kidney Foundation UK Source > National Kidney Foundation USA Source > National MPS Society (National Mucopolysaccharide Society) Source > National Multiple Sclerosis Society Source > National Organization of Rare Disorders (NORD) Source > Nema - Vlaamse Verening Neuromusculaire aandoeningen (Flemish Association of Neuromuscular Disorders) Source > New York Academy of Sciences Source > Nierpatientenvereniging Rijnmond (Kidney Patient Association Rijnmond) Source > Njurförbundet (Swedish Kidney Association) Source > North American Transplant Coordinators Organization Source > Nyrenyt / Nyreforeningen (Danish Kidney Association) Source > OGG - Osterreichische Gaucher Gesellschaft Source > Oklahoma Society of Clinical Oncology Source > Orthopaedic Research and Education Foundation Source > Panhellenic Kidney Disease Association Source > Park Nicollet Institute Source > Partnership for Quality Medical Donations (PQMD) Source > Patient Services Inc. Source > Patientforeningen for Fabrysjuka i Sverige (Patient Association for Fabry Disease) Source > PESPA - National Association for Rare Diseases (Greek Alliance of Rare Diseases) Source > Project HOPE (People to People Foundation) Source > Rarissimas-Associacao Nacional de Deficiencias Mentais e Raras (Nat'l Association of Rare Mental Disabilities) Source > Rheumatology Nurses Society Source > Russian American Medical Association Source > Scleroderma Research Foundation Source > Sdruzeni META - sdruzeni pacientu se stradavymi onemocnenimi, o. s. (Patients with stradavymi disease) Source > Selbsthilfegruppe Glykogenose Deutschland e.V. (Self-help group for glycogenosis patients) Source > Selbsthilfeorganisation Morbus Pompe Osterreich Source > SFN - Stichting Fondsenwerving Nierpatientenverenigingen (Foundation of Kidney Patient Associations) Source > Society 'Hunter Syndrome' (mucopolysaccharoidosis) Source > Society for Mucopolysaccharide Diseases (MPS Society) Source > Society for Patient Rights in Israel Source > Society for Study of Inborn Errors of Metabolism Source > Stowarzyszenie Chorych na Mukopolisacharydoze i Choroby Pokrewne (Society of Families of Kids w/ Mucopolysaccharidosis) Source > Stowarzyszenie Rodzin z Choroba Fabry'ego (Association of Families with Fabry Disease) Source > Stroke Association Source > Suomen Fabry Yhdistys (Finland Fabry Association) Source > TRANS-FORME Source > Udruga distroficara, invalida cerebralne i djecje paralize i ostalih tjelesnih invalida Slavonski Brod Source > Vesebetegek Országos Szövetsége - National Alliance of Associations of Hungarian Nephropatic Patients Source > Vivre sans Thyroide ("Living Without Thyroid") Source > VKS - Volwassenen, Kinderen en Stofwisselingsziekten (Adults, Children and metabolic diseases) Source > VML - Vaincre les Maladies Lysosomales (lysosomal disease) Source > VML Suisse - Vaincre les Maladies Lysosomales Suisse (Lysosomal Diseases Vaincre Switzerland) Source > VOKK - Vereniging 'Ouders, Kinderen en Kanker' (Parents, Children and Cancer) Source > VSN - Vereniging Spierziekten Nederland (Dutch Muscular Association) Source > Washington State Medical Oncology Society Source > World Alliance of Neuromuscular Dystrophy Associations (WANDA) Source > ZDLBS - Zveza drustev ledvicnih bolnikov Slovenije (United Kidney Patients Association Slovenia) Source >

Has relationships to the following people Jose A. Arruda Stephen Bajardi Edmund J. Blake Jr. Lewis E. Braverman Deborah I. Brommage Jim E. Cantalupo Glenn M. Chertow John Davis William Delahunt Francis L. Delmonico Christian Downs John M. Flack Scott L. Friedman Gregory Gores JT Jacoby Pasi A. Janne Wendy E. John Kelly Kiernan Largey Gerald Leval Adeera Levin Richard B. Lieb Robert Lindsay Thomas J. Lynch Thomas A. Marsland Kimba Roger McCant Aaron E. Miller Carlos M. Morales Keith C. Norris Jeffrey D. Punch Alma Rangel Thomas G. Roberts John Sabl Peter Sheehan Heidi L. Steiger Henry Stifel, III Krishen Sud Daniel Douglas Von Hoff David G. Warnock Leonard Wartofsky Art Wood